The Clinical Science Program Manager (CSPM) is responsible for managing programs that relate to clinical science and research for the Fanconi Anemia Research Fund (FARF). These programs include, but are not limited to: Fanconi anemia clinical patient registry; cancer virtual tumor board; publication of the clinical care guidelines for Fanconi anemia, the cancer consortium biorepository, and collaborative scientific events. The position requires at least a master’s degree in a biomedical research or healthcare-related field, or the equivalent. The CSPM must have strong verbal and writing skills and understand clinical and scientific jargon. The best candidate will have a track record of organizing highly complex scientific programs in the clinical arena. The FARF office is located in Eugene, OR, but this position can be done remotely. Post- pandemic, FARF will require travel to events and conferences. This position reports to the Scientific Director, who will also evaluate the employee. Applicants must submit a cover letter and resume direct via email to be eligible for consideration as directed below.
About the Fanconi Anemia Research Fund (FARF)
FARF is considered one of the world's premier rare disease research organizations. Our mission is to find effective treatments and a cure for Fanconi anemia (FA) and FA- related cancers and provide education and support services to affected families worldwide. We have awarded over $25 million dollars in grants to researchers to support biomedical research projects focused on understanding the disease and how to treat it. Over the past 30 years, we have significantly improved and expanded the lives of those with FA through research.
Responsibilities include, but are not limited to:
Direct all patient recruitment, enrollment, registry account validation, information request, and survey administration for the FA patient clinical registry.
Manage all clinical registry regulatory requirements.
Proactively identify data issues and tabulate and analyze clinical registry summary statistics and work with external stakeholders on clinical research projects.
Manage the development of an integrated global FA patient registry network with existing international FA clinical registries.
Interface with clinicians and researchers worldwide to facilitate clinical registry data extraction for research and therapeutic purposes.
Provide management of the Fanconi anemia cancer virtual tumor board, including data sharing, patient follow up, and assist with reporting and publication of patient outcomes.
Coordinate and oversee development and activities of the FA Cancers Clinical Trial Consortium.
Manage the update process for the online version of the Fanconi Anemia Clinical Care Guidelines manual.
With external stakeholders, manage the tumor acquisition process for the development of a FARF biorepository.
Develop clinical scientific meetings for external stakeholders.
Terms of Employment
This is a full-time, exempt position. The salary range is $55,000-$60,000; the Executive Director will determine the exact salary. The position will include a full benefits package.
Please email a cover letter and resume (preferably as a PDF) to [email protected]. Please also indicate where you located the job posting.
Telecommuting is allowed.
Additional Salary Information: Full benefits included.
About Fanconi Anemia Research Fund
Our mission is to find better treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide.
The Fanconi Anemia Research Fund (FARF) is the world leader in advancing research for better treatments and a cure for Fanconi anemia. Founded in 1989 by parents Lynn and David Frohnmayer, FARF has supported more than 245 grants to more than 160 investigators worldwide. Over the last 31 years, our outstanding donors have enabled us to fund $25 million in research grants.