The Coordinator, Events & Family Support will be responsible for supporting the efforts of the Events and Family Support team and assigned territory manager for success and growth of fundraising events. He/she will support programs in their assigned territory, including chapter and volunteer management. The ideal candidate will model and foster behavior that values the staff/volunteer partnership, is consistent with the values, goals, and objectives of Cure SMA, and creates an atmosphere of respect, innovation, balance, compassion, determination, collaboration and dedication to the mission.
Contribute to the revenue, implementation and recruitment goals for all fundraising events within assigned territory in the defined timeframe to generate participant, sponsorship, volunteer and in-kind growth
Support the administrative needs of the territory including executing marketing plans and coordinating event logistics.
Plan, guide, coordinate, and implement events in collaboration with volunteer chapter leaders and volunteer committee members.
Create and execute new fundraising strategies to grow additional revenue
Contribute to plan for maximizing team participation to achieve revenue goals by retaining existing teams, attracting new ones from all sectors of the community and by providing fundraising guidance and support to event leaders and participants.
Maintain year-round relationships with key corporate sponsors and constituents to ensure involvement in all relevant chapter activities and recognition opportunities
Build successful relationships with key volunteers, participants, sponsors and community leaders as well as existing and new corporate partners.
Provide positive customer service to all affected individuals, families, donors, participants and teams by responding promptly to requests and providing consistent year-round communication.
Become an expert on Cure SMA support programs and services and connect affected individuals with local resources and appropriate programs and services.
Serve as Cure SMA liaison in an assigned territory for family support programs
Outreach to newly diagnosed families at designated times to offer support
Must get along well with volunteers and understand how this role works within a volunteer framework
Ability to manage large numbers of volunteers at different levels of expertise with diplomacy
Ensure effective use of Cure SMA resources
Ability to handle sensitive information and maintain confidentiality.
Ensure compliance with Cure SMA policies, including employment, event and cash handling, and financial controls.
Ability to work with diverse communities and demonstrate inclusion
Participate in required education programs and meetings
Perform other responsibilities as assigned
Minimum Skills/Experience Required:
One year of experience in peer-to-peer fundraising, such as Walk and Run events , and/or non-profit administration experience.
Ability to work successfully in a goal-driven environment.
Ability to manage multiple projects with overlapping deadlines
Excellent organizational, planning and project management skills
Confident, goal-oriented, positive self-starter who is able to work independently with limited supervision and collaboratively with internal and external partners
Ability to be an effective, contributing team member and to work collaboratively across departments at all levels of the organization.
Skilled communicator, with superior interpersonal, verbal and written skills.
Ability to effectively articulate Cure SMA’s mission and impact.
A strong work ethic with a drive to succeed and a willingness to learn, essential for a demanding environment that continually strives for excellence.
Excellent time management and problem-solving skills with a high level of detail orientation and accuracy
Working knowledge of MS Office required
The physical demands and work environment described here are representative of those that must be met by an employee to successfully perform the essential functions of this position. Reasonable accommodations may be made to enable individuals with disabilities to perform the essential functions.
Work requires walking, standing for long periods of time, bending, reaching, lifting boxes, and unloading supplies. Requires ability to lift 40 pounds.
Frequent overnight, evening and weekend travel to other areas of the US
Attendance at 1-week Annual Conference is required
Work is generally performed within an office environment with standard office equipment available.
Applicants, as well as position incumbents, who become disabled as defined under the Americans with Disabilities Act must be able to perform the essential job functions (as listed) either unaided or with the assistance of a reasonable accommodation to be determined by management on a case by case basis.
Cure SMA. is committed to the principle of equal employment opportunity. Applicants for employment and employees are reviewed on their individual qualifications for a position. Under no circumstances will Cure SMA discriminate against qualified persons on the basis of race, color, religious creed, retaliation, national origin, ancestry, sexual orientation, gender, gender identity/expression, disability, mental illness, genetics, choice of health insurance, marital status, age, veteran status, or any other basis prohibited under applicable law.
About Cure SMA
Cure SMA is a 501 (c)(3) organization dedicated to the treatment and cure of spinal muscular atrophy (SMA), a disease that takes away a person's ability to walk, eat, or breathe. It is the number one genetic cause of death for infants.
Cure SMA is committed to the principle of equal employment opportunity. Applicants for employment and employees are reviewed on their individual qualifications for a position. Under no circumstances will Cure SMA discriminate against qualified persons on the basis of race, color, religious creed, retaliation, national origin, ancestry, sexual orientation, gender, gender identity/expression, disability, mental illness, genetics, choice of health insurance, marital status, age, veteran status, or any other basis prohibited under applicable law.