General Job Function: The Coordinator is responsible for supporting the efforts of the development team for success and growth of fundraising events and programs in assigned territory, including chapter/volunteer management as well as those tasks that will ensure the success of the mission of Cure SMA.
Principal Job Duties and Responsibilities:
Events and Chapter Responsibilities:
Meet the revenue, implementation and recruitment goals for each fundraising event in the defined timeframe to generate participant, sponsorship, volunteer and in-kind growth
Plan, guide, coordinate, and implement events in collaboration with volunteer Chapter officer members and volunteer committee members.
Work with Chapter families, Cure SMA staff and community leaders to identify, solicit, recruit and develop volunteers including event chairs and committee members
Train Chapter leadership and event coordinators on best practices regarding:
Sponsorship identification and recruitment
Event marketing, media relations and overall execution
Cure SMA policies and procedures
Effectively delegate and accomplish goals through the recruitment and development of volunteers
Ensure that clearly defined volunteer positions and responsibilities are utilized for each of the events and for assigned committees
Regularly communicate appropriate plans, activities and benchmarks with volunteers
Maintain accurate records and data for all events and share with Chapters and other departments as necessary or when requested
Properly process all Chapter, participant and donor acknowledgements and sponsor recognition, contracts, insurance requests, accounts payable and receivable as related to fundraising events
Build successful relationships with sponsors and event participants for the purposes of promoting Cure SMA and facilitating other opportunities for partnership
Steward and cultivate relationships with existing donors and key Chapter members
Coordinate necessary print, mailing and distribution activities for assigned events
Establish new Chapter(s) by linking families together throughout territory, providing tools and resources, recruiting Chapter leadership and implementing strategic plan
Assist other territory staff with events as assigned
Family Support Responsibilities:
Serve as Cure SMA liaison in a specific state or region for family support programs
Coordinate with Newly Diagnosed Family Support Contact on support for all newly diagnosed families within a specific state or region. Outreach to newly diagnosed families at designated times to offer support
Provides family support to SMA families and members through phone calls, emails and meetings
Makes support referrals to other SMA families as requested
Offers available programs and resources to families, such as wagons, specific items in the Cure SMA Equipment Pool, conference scholarships and other support resources as needed
Steward and cultivate relationships with key Chapter families and members
Build successful relationships with families, corporations and volunteers for the purposes of promoting Cure SMA and facilitating other opportunities for partnership
Updates information and content continuously on the Cure SMA website
Assists with content and editing of Directions Newsletter
Coordinates with Equipment Pool Contact and refers families seeking information on the equipment pool
Promotes accurate, consistent and up-to-date local information throughout all communication channels
Shares current research information, announcements and updates to Chapters within assigned territory
General Job Duties and Responsibilities:
Assist with departmental projects and administrative responsibilities
Ensure effective use of Cure SMA resources
Participate in required education programs and meetings
Perform other responsibilities as assigned
Minimum Education: Bachelor’s Degree from accredited college or university preferred
Job Experience: Experience in fundraising events and volunteer management preferred
Ability to manage complex logistical planning and execution
Excellent collaboration, communication, organizational, and problem-solving skills
Excellent organizational, planning and project management skills
Able to manage multiple projects with overlapping deadlines
Ability to work collaboratively and independently
Interpersonal skills to build chapter and family relationships
Working knowledge of MS Office required
Physical Requirements of Position:
Work requires walking, standing for long periods of time, bending, reaching, lifting boxes, and unloading supplies. Requires ability to lift 40 pounds.
Frequent evening and weekend work
Travel for events and meetings required
Attendance at 1-week Annual Conference is required
Work is generally performed within an office environment with standard office equipment available.
Applicants, as well as position incumbents, who become disabled as defined under the Americans with Disabilities Act must be able to perform the essential job functions (as listed) either unaided or with the assistance of a reasonable accommodation to be determined by management on a case by case basis.
Cure SMA. is committed to the principle of equal employment opportunity. Applicants for employment and employees are reviewed on their individual qualifications for a position. Under no circumstances will Cure SMA discriminate against qualified persons on the basis of race, color, religious creed, retaliation, national origin, ancestry, sexual orientation, gender, gender identity/expression, disability, mental illness, genetics, choice of health insurance, marital status, age, veteran status, or any other basis prohibited under applicable law.
About Cure SMA
Cure SMA is a 501 (c)(3) organization dedicated to the treatment and cure of spinal muscular atrophy (SMA), a disease that takes away a person's ability to walk, eat, or breathe. It is the number one genetic cause of death for infants.
Cure SMA is committed to the principle of equal employment opportunity. Applicants for employment and employees are reviewed on their individual qualifications for a position. Under no circumstances will Cure SMA discriminate against qualified persons on the basis of race, color, religious creed, retaliation, national origin, ancestry, sexual orientation, gender, gender identity/expression, disability, mental illness, genetics, choice of health insurance, marital status, age, veteran status, or any other basis prohibited under applicable law.